7 Comments

You book hit me in ways that most will never understand. My son is 9 and reminds me of cooper. When we found out about his diagnosis at almost 3, it felt the worst then anything I’d ever experienced before. I seen your video a few weeks later on facebook and I followed then when ur book came out I read it and I was in tears the entire time. It hit home hard. I don’t know how I would have gotten through any of this if I hadn’t seen your Facebook page. Your the first person I knew how exactly I felt and how much you were dealing with was the same as myself I thank you for your time and energy that your efforts made my life so much more normal, others are going threw same as me

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I highly recommend the award winning documentary, SPELLERS. It's all about nonverbal kids with autism communicating and it is so moving and well done. They finally put the whole film on youtube

and it's a real tear jerker. When it played here in AZ at the Phoenix Film Festival, ,there was not one dry eye in the theater: https://www.youtube.com/watch?v=8h1rcLyznK0

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This post made me choke up. My little 3 yo, much like Cooper, doesn’t have a lot of words. He’s learning how to use his device. My mom tells me all the time “he has it in him - I know he’s going to talk.” And all I think is - what if he never does?

Your stories give me a lot of hope and comfort. Thank you!

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When my 30year old daughter was small, she also did not talk. She had meltdowns that were fierce and violent. She hurt herself. I was convinced that she had a hearing disability. But all hearing tests came back clear.

Finally, a neurologist said, If she was a boy, I’d diagnose her with Asperger’s, but girls don’t have Asperger’s. Little did they know at that time!! I worked outside the house more than 40 hours a week; I finally placed my daughter in a special school for kids with behavior disorders. Omg, her teachers, Laura Sturm and Donna were miracle workers. Every day, Donna would do things like brush her hair, which she refused to do herself or to let me. After several years, my daughter made enough progress that she was returned to the LEA schools . She graduated from high school with highest honors. She went to community college, then on to a « sleep away » university where she was bullied at first, but then did very well.

She could not pass the exam for a teaching certificate, but had a wonderful graduation from university! She now has been a Teaching Assistant in the same school’s self-contained classroom for five years. Her students, whom she loves very much and they love her, have meltdowns on occasion and have hurt her but she always has bounced back.

My daughter is quite a remarkable person! She is a leader and has won awards from the school district. I am just as proud of and pleased with her as I can possibly be! I’m writing to let other parents know that sometimes, the little Aspie kids who it seems can’t do anything right, will turn around and be some of the best human beings you could ever meet. Don’t EVER lose hope or count them out! You never know what your child can do!

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Getting the book for grandma and great grandma and gramps to read as my Great nephew age 5 won’t talk. I am not sure if he has been diagnosed with autism yet but is going through testing

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Hello, I am wondering how long it took for Cooper to use his talker, and does he understand that the voice from the talker is supposed to be him talking?

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All of this, right down to my parents’ reactions when I first noticed something was different. Milo turns 13 next month. I’m right there with you. Everyday.

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