I stumbled across an old blog post of mine the other day titled, ‘What if my son never speaks to me?’
The words that followed were filled with fear and longing. My son was 5. And my hope had ran out.
Why? Well, someone, a professional, had told me that if my son, a little boy with severe, nonverbal autism, didn’t speak by age four, then game over.
I was crushed. Devastated. Heartbroken.
As I read my fears displayed on my computer screen, I had this urge to hug the old me. To tell me to hang on.
Just hang on mama. Please don’t give up.
A few days ago, my son Cooper and I sat side by side on the couch.
He touched my leg and said ‘SSS-AH-W-ER?’ (Which is his brother’s name.)
I waited and he followed up with ‘SSS-AH-W-ER UP!’
‘Yes’, I said, ‘Sawyer is upstairs.’
He smiled and loudly ‘sssshhhhh’d’ me.
‘Yes, Sawyer is upstairs sleeping.’
And then he growled while throwing his hands up to his face! A big growl like a lion on the show he was watching. He suddenly dropped to all fours and growled again.
‘Do you want to go scare brother awake?’
With two pumps in the air, he shouted a loud ‘yes!’ Giggles followed. Belly laughs deep inside.
He wanted me to stop him. To chase him. He was teasing me. He was being silly and adorable.
I dropped off the couch, to my knees, and engulfed him in the hugest hug. I tickled every part of him and blew huge raspberries into his neck. He laughed uncontrollably, squealing with joy.
He pulled my face down to kiss my cheek and buried his face into my neck.
Yeah, I guess maybe there is a chance he may never talk to me. There is always that possibility. But that professional never told me that we’d have this. This right here.
Hang on parents. Just hang on.
Don’t focus on the things that can’t, won’t or may not happen. Instead, think of the things that will. And can. And may.
Because this world, this beautiful world, isn’t black and white. It’s full of possibility and color.
Love,
Kate
There are TWO DAYS LEFT to order a personalized copy of the paperback version of Forever Boy from Valley Bookseller! Each copy will be autographed by Coops and me and can be personalized to you, a teacher, a fellow mama, whomever. This would be a great gift! Remember, Mother’s Day is coming!
This book will be released in March and has a bonus chapter that shares our how family has grown since the hardcover was published nearly two years ago! That blows my mind. We had another baby, moved again, and more.
I’d be so honored if you ordered from my favorite bookstore to show support to them and me!
Many of your found me from this video. I share it every single time I do a presentation. I share it so the people in the audience understand what a caregiver in crisis looks like. I share it so people understand that it is okay to grow from grief. I share it so I remember how far I’ve come.
Kate, your post about Cooper saying Sawyer’s name just made my day. I am so so happy for you, and the major unexpected things that Cooper does. I wish you had a video of that moment and of you chasing him around on the floor…..not for you to share but to keep forever in your memories. I love everything you share with us who adore you so much and I know you like to keep many moments private. My daughter called me today after leaving ABA therapy with her 4 year old and she shouted with so much happiness “Landon peed in the potty today at therapy”. I know my husband thought I was going crazy, yelling WOO HOO! That’s was a milestone moment because he has never showed any interest in potty training. At ABA they sit him on the potty chair for 5 minutes without his pull ups on. Of course we had a good chuckle, because he didn’t know what to do so most of it went on the floor, his clothes and the wall. Heather helped the therapist clean Landon and the bathroom up. Happy Days!!! We will never give up. I share Cooper and you with Heather everyday so she can see all the positive improvements that Cooper makes. You make a difference in so many lives and your family is so blessed to have you. I hope Winnie is feeling better.
Thank you for sharing with us the colours of autism.
I feel blessed to know Cooper 💙