My sweet boy, today is your birthday.
Fourteen years old. I know it sounds silly, but I almost can’t believe it.
All moms say that I suppose. But with you, it’s true.
Time in our world is different. Fast. Then slow. Then backwards. Even upside down.
It has even stopped. Wowzers those were some tough years.
But you and I both know that age is just a number. And milestones are just another checklist we don’t pay any attention too.
Because you my son, are different. Perfectly, and uniquely your own age. A combination of young and old. Elmo and old-time train videos.
You are on your own path. And no one else on this earth is on it. Which used to really scare mommy. But now, in a way, it motivates me.
Because you kid, can pave the way. You can show them all how it’s done. How cool is that?
As I sit here watching you practice your words with your speech therapist, I can’t help but think about all of the crazy things that have been said to us over the years.
Someone once told me that you would never make a friend, ride a bike or learn to speak. She said she was an expert. She knew kids like you.
Another person said I should prepare for a life without words. That I need to accept it.
A professional once told me that you had the most severe case of autism he had ever seen and that you wouldn’t be living with us for long.
Someone once told me that if you didn’t have any words by age 4, you never would. I remember thinking age 4. We got this. We can do this. All during your third year I would think…’at least we are on the right side of age 4.’
And then that birthday came and left. No words. And I believed it.
A test once told us your IQ. A ridiculous, aggravating test, that asked you questions but didn’t even give you a way to answer them. It still makes my blood boil.
And here’s a secret buddy, I cared. I thought that test meant something. Speaking of silly moms. Geez right?
I was told that you were deaf and that you would never be potty trained.
Not too long ago I was told that you had the language skills of a 6 month old baby. And that your cognitive abilities weren’t far ahead of that.
They sure seemed embarrassed when I pointed out that you could read. And spell.
I was even told you were too severe for public school. How can that be I still wonder.
I was told all of these things because you have autism. One word has the ability to forecast all of those things I guess.
Most of the things I was told were bad. Really bad. But you never knew that. Your dad and I would never allow a negative thing to be said about you in your presence. Because you were always listening. Even if they didn’t think so.
Sometimes I wonder if maybe I wouldn’t have been so scared about your diagnosis if just one person would have told me something good.
If they would have told me about an amazing child like you.
Well, you know what?
Six years ago, you had no words. No approximations. No mimicking. You didn’t use spoken sound to communicate in any way.
Our doors were locked tight. Internal and external.
You couldn’t safely ride in a car or walk down the street.
When you got frustrated, or mad, or scared, you’d do things that I don’t even like to think about anymore.
You stripped our beds, put everything in the bathtub, lined up chairs, and stole photos from frames. And don’t even get me started on the times who hid my credit cards and drivers license.
Kid, what a year. What a ride really.
And today, you are fourteen.
You have 40 or so words. They may not make sense to everyone else, but I understand every single one.
You can type words into YouTube. You can even read. You write your name. You use a fork and a spoon. You put your own shoes and jacket on.
You have a cell phone. We just took the train to Chicago. You have two friends, maybe more. You go to homeroom in school with other 8th graders. You carry in the groceries and even attempt to put them away. You can use the remote. You can crack mom’s amazon password and shop.
You unbuckled your own seat belt this morning. Walked into speech safely, on your own. I didn’t have to hold you with two hands. I didn’t worry about you running into the street.
You even pointed to the ice on the path and giggled and ‘pretended’ to slip like the character’s in your cartoons do.
When I asked whose birthday it was you said ‘MMMM-EEEEE!’
We are going to have a cake and balloons tonight. And presents. You reminded me that I can’t forget the presents.
And in two weeks you are having a friend birthday party. Can you believe that?
You my son are amazing. Because you will shatter every single dang thing they told me that you would never do.
And you did it all. You. At your own pace. Even when the world didn’t believe it would happen.
You, my son, are a lifelong learner.
And you are going to change the world. Just by being you.
I’m so proud of you Cooper.
I can’t wait to see what this next year brings.
Happy Birthday my sweet boy. I love you so so much.
Love,
Mom
SPECIAL OFFER!
This Sunday night, at 7 pm central, I will be doing my presentation, Finding Joy in the Secret World of Autism, via zoom for my paid subscribers. This is my presentation that I have shared all around the US to families, teachers, professionals, and more.
It’s the story of us and our journey from diagnosis through today with a reflection back on my family's journey through an autism diagnosis, early intervention, and navigating a world not made for Cooper, and the emotional toll these processes can take on a family. In this presentation, I discuss the transformation I made as not only a parent, but as a person, and the support that parents need from professionals, family members, and those within their community to help their family adjust to this new chapter of life. This presentation will inspire, bring laughter and tears, and ultimately be a conversation starter for the listeners.
To see this presentation, and join me via zoom, upgrade to a paid subscription right here. Essentially, $4.50. The price of a cup of coffee! And you also get extra weekly essays, videos, zoom, and early access to register for events!
Thank you all for being here! I appreciate you so much!
Kate
Keep reading with a 7-day free trial
Subscribe to Finding Cooper's Voice by Kate Swenson to keep reading this post and get 7 days of free access to the full post archives.